Today Madison left the hospital! We departed around 12:34 with tears of joy in our eyes and gratefulness in our hearts! This "season" has changed my relationship with God, focus on life,, and so much more! Words can't express the emotions I have felt today! Ryan and I are completely blessed to have a baby cancer free! Thank you for loving us on this journey and please continue to pray.
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Completely in AWE of how fast the last 70 days have gone.... God has shown his splendor, patience, strength, and love. This season has changed us, shaped us, and prepared us for the next season. Thank you for being on this journey with us! We pray that God's light continues to shine through us, around us, and beyond us. We pray that you will see God's love and learn to trust his ways and have faith in him no matter the season of life you are in.... God's plans even if when we don't understand them we trust them... We pray you can find the faith to do the same. I made a little video of this season that comes to a close today. We have embraced this season and now are ready for the next! Every morning and every night this is what Madison does... Her line up of six oral meds and as you can tell she doesn't care for them. A special thank you to Old Capitol View and the fundraiser they did today. Also, thank you to all of our family and friends who ate there to support Madison!!! Muffy has a big week ahead! Please be in prayer as she begins this new "season." I will be getting our apartment keys tomorrow and she will be discharged on Tuesday! Madison is so busy!!!! She is feeling great and ready to move out of the hospital! My endless time to blog, long naps holding a baby, and 2 hour bible reading has come to a close.... Madison has tons of things to do to make up for being sick the last two months. Her vocabulary is going crazy, she is walking, climbing, and into everything! Ready for this new "season" called recovery! Apparently, "skype" is no longer her thing! We are so ready for a family hug! Thanks for all the prayers! Dr.Bhatla came in today and I feel so much better! I feel like it's becoming more and more mangeable! God has moved in big ways the last 68 days and I know he will continue! Enjoy this fall weather I can't wait to get outside Monday!!!! Embracing our last couple of days in the hospital and praying we won't be back anytime soon! Well, who am I kidding we will be in clinic twice a week:) Well, after 67 days total I reached my breaking point. I'm pretty sure the week of not sleeping has made it all way more worse than it actually is... It's crazy how no sleep changes everything. I've had a week full of home health training, begging Muffy to eat like she did last week, and did I mention we haven't slept...... Today tears fell with the reality and fear that we were leaving the bubble on Tuesday. So many iv meds, oral meds, butt meds.... You get my point. Uncle Alan passed away three years ago today, and it's September 11th (really shouldn't be crying because I have Madison). I decided I had two options... 1. Keep crying or 2.start asking for help..... Of course God has given Ryan and I great resources so now a few hours later the load is looking manageable. A good friend came today and made me laugh, which is beyond what I needed... She also brought two cinnamon rolls from Open door and I really needed those!!!!! My mom had a customer that sent me three verses that kept me focused.... And then Madison and I got a 30min nap in..... Here is to embracing today as a lesson learned and a new day tomorrow. |
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