Not really sure where this week has gone. Kids are starting to deliver their May-day and Mother's Day gifts... (Yes, we are ready for May!) Going to wrap up delivering tomorrow morning. My silly phone hasn't been holding a charge so unfortunately, I haven't been able to take pictures!
We had a wonderful day celebrating the future arrival of baby Brooklynn! Our first niece will be born in a month!❤️ So excited seeing the love Kyle and Michele have for one another and their anticipation on Brooklynn's arrival.
We had a wonderful day with extended family! ❤️❤️I love spending time with my cousins and my kids spending time with theirs.
After a year, of Madison being too critical to leave her; Ryan and I are heading north for the day and evening tomorrow. Please pray the kids behave medically, we have safe travels, and most of all we get the rest and refocus we need.
Madison is stable and still trying to reduce iv meds so she can get her broviac out... The skin rash just won't leave her alone. Praying this isn't a lifelong problem.
Have a wonderful weekend and back to blogging on Monday.
ONE YEAR LATER...
Today marks the one year since our lives forever changed! Madison and I celebrated by traveling to St.Louis for clinic, Madison blew out her pants so got a new outfit, and decided naps were not needed.
Aunt Kathy made Madison her favorite meal (spaghetti) and we all are heading to bed early!
I strung all of Madison's beads from the past year and counted them... An emotional process thinking about all she has been through. The length of the beads is a little over 18 feet. Each bead symbolizes a different part of her journey. The beads symbolize the following:
27: Blood Transfusions
5: Bone Marrow Aspirations
3: Central Line Inserts
1: Central Line Out
10: Days of Chemo
79: visits to the Costas Center
12: Visits from Child Life
5: ER Visits
25: Days with a fever
7- Home nurse visits (apartment and home)
18- Days with continuous pain meds
112: Days in the hospital
45: Pt/Ot in the hospital
17: Really Bad Days
1: Bone Marrow Transplant
58: Pt/Ot at home
203: Good Days
4:Speech at home
7:DT at home
12:Dietitian visits hospital and home
Thank you for all your love and prayers this past year! Thank you God for giving us love, peace, and determination! ~Matthew 6:34
A wonderful morning at Zion Hill Baptist Church in Centralia, IL. A true blessing to spend the morning with several that have prayed for our family.
Ryan and the kids played outside enjoying the beautiful weather. Madison is a beast to try to get inside... Don't even try taking her mask off and making her stay inside. She loves playing with Harrison and Mae outside.
I will be spending my "blog time" over the next three days in my prayer room. Madison was diagnosed a year ago on Thursday (28th). We have much to thank God for and that is exactly what we will be doing the next few days.
Have a wonderful beginning of your week and I'll be back to blogging on Thursday!
This week has drained me emotionally, physically, and spiritually. Thankful for God's love and patience with me this week! This evening I've been selecting pictures of the kids for our bedroom. For the past three years, Cousin Tasha takes the kids out to play and captures their personalities! So thankful for her, her love for the kids, her love for God, and her talent!
I've been in tears the last 30 minutes looking at these three pictures. The past year has been one trial after another. We have focused on God and loved each other through it! This journey hasn't been easy, but each day we choose to glorify God! THANK YOU GOD FOR CHOOSING RYAN AND I TO BE HARRISON, MAEBRY, AND MADISON'S PARENTS! THANK YOU!
Tomorrow morning I will be speaking at Zion Hill Baptist Church, Centralia IL . Service begins at 10:30 and would love to see you there!
The focus of the message comes from Romans 5:1-8. We all have mountains, we all have trials, we all are tested. The question is how do we let our light shine midst all of those things? Join me at Zion Hill to find out!
Harrison, Mae, and I are having a movie night in the basement... The kids need me tonight so blog is short... The devotion for today was as follows! Praying it speaks to you as it did me!
I enable you to go on the heights, to wander with Me in the Glory of My Presence. You may feel as if you can barely take the next step on this long journey upward. As you look ahead, you see cliffs that seem impossible for you to climb. Yet I am with you always, holding you by your right hand. I guide you with My counsel, helping you find the best way to scale those heights. Though you are on a challenging-at times, grueling-journey with Me, it is much more than an endurance contest. The fact that I am with you can infuse Joy into the steepest climb! Be on the lookout for all the pleasures I have prepared for you, and take time to enjoy your devoted Companion. You may think that the heights refers to the very top of the mountain you are climbing. But if you stop and look back at how far up you have come, you'll realize you are already on a high place. So relax a bit and gaze lovingly at Me. The Glory of My Presence is all around you! The Sovereign Lord is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights. -Habakkuk 3:19 I am always with you; you hold me by my right hand. You guide me with your counsel, and afterward you will take me into glory. -Psalm 73:23-24 I saw the Lord sitting on a throne, high and lifted up, and the train of His robe filled the temple. Above it stood seraphim; each one had six wings: with two he covered his face, with two he covered his feet, and with two he flew. And one cried to another and said: Holy, holy, holy is the Lord of hosts; the whole earth is full of His glory! -Isaiah 6:1-3 nkjv