Day 109: God's Plan...
Behind this door Madison was getting her 100 day bone marrow biopsy. Ryan and I have been in this situation twice for Harrison, twice for Maebry, and five times for Madison since April 17th. We have gotten the best news and also the worst..... Every time we are in this situation we don't know what God's plan will be.... We just trust him and wait for the results. We still don't know anything on Madison's biopsy and praying we do by tomorrow.
I'm so thankful that Ryan can be with us on days like today. Sometimes you just need your husband!
Today a little one finished their last round of chemo... My eyes were full of tears when I seen all the colorful paper on the floor! Thank you God for being their for this child and their family.
Madison had a few vomiting issues last week along with a gvh rash that came back... Tonight she was sick again. I'm praying that it was from the anesthesia they gave her for the biopsy. Her med list is intense and trying to give her seven oral meds when she doesn't feel well is a challenge. Tonight, between butt care, gvh rash care, iv meds, and oral meds her line-up involved 22 prescriptions. Moms all across the world care for their children with an array of diseases, illnesses, and challenges. Thank you! Thank you for making your child your focus and priority. Remember you are the best mother for your child! I'm blessed to know several amazing mothers!
Today Dr. Bhatla brought up the gastrostomy tube (g-button) for feedings. It was brought up at the end of September, but we decided to give Madison more time. Madison takes 5 steps forward then 10 steps back with eating. Ryan and I have a lot to discuss and IF we chose to go this route surgery will be at the beginning of December. Madison eats better when Harrison and Mae are around so praying that over the next few weeks she begins eating more.
11/2/2015 05:31:51 pm
Praying with all of my heart for precious little Madison.
11/2/2015 06:31:43 pm
Praying for you. You are the best mom for your child.
11/2/2015 06:43:10 pm
I wait every evening for your Madison updates. Praying intensely for the best test results for your little sweetie. Love to the Lash family! 😊🙏😊🙏😊🙏😊🙏😊🙏😊🙏😊🙏
11/2/2015 06:52:14 pm
Thank you for reminding me today of how special each mommy is to their baby. How special each baby is to their mother and how special we all are to God. My heart breaks for your family to go through this. I feel God is reaching several hearts through you and yours.
11/2/2015 07:06:32 pm
Yes you are your children's best mom.
11/2/2015 07:18:50 pm
You are such an inspiration. My son had his first illness this past week of croup. I know nothing like the C word but absolutely broke my heart to see my child sick and you do it almost every day!!! Your strength and words are inspirational!
11/2/2015 08:43:30 pm
Praying for strength and quick answers.
11/3/2015 07:21:38 am
Prayers for you, Madison and your entire family! You are a true inspiration! Your faith and love are uplifting to everyone!!
11/3/2015 09:19:26 am
praying for you folks.
11/3/2015 06:28:46 pm
Praying that Madison can be hungry and eat...and that the food will taste good to her. Praying for strength and rest for the whole family.
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