Day 109: God's Plan...

Behind this door Madison was getting her 100 day bone marrow biopsy. Ryan and I have been in this situation twice for Harrison, twice for Maebry, and five times for Madison since April 17th. We have gotten the best news and also the worst..... Every time we are in this situation we don't know what God's plan will be.... We just trust him and wait for the results. We still don't know anything on Madison's biopsy and praying we do by tomorrow.  

I'm so thankful that Ryan can be with us on days like today. Sometimes you just need your husband!

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Today a little one finished their last round of chemo... My eyes were full of tears when I seen all the colorful paper on the floor! Thank you God for being their for this child and their family. 

Madison had a few vomiting issues last week along with a gvh rash that came back... Tonight she was sick again. I'm praying that it was from the anesthesia they gave her for the biopsy. Her med list is intense and trying to give her seven oral meds when she doesn't feel well is a challenge. Tonight, between butt care, gvh rash care, iv meds, and oral meds her line-up involved 22 prescriptions. Moms all across the world care for their children with an array of diseases, illnesses, and challenges. Thank you! Thank you for making your child your focus and priority. Remember you are the best mother for your child! I'm blessed to know several amazing mothers!

Today Dr. Bhatla brought up the gastrostomy tube (g-button) for feedings. It was brought up at the end of September, but we decided to give Madison more time.  Madison takes 5 steps forward then 10 steps back with eating. Ryan and I have a lot to discuss and IF we chose to go this route surgery will be at the beginning of December.  Madison eats better when Harrison and Mae are around so praying that over the next few weeks she begins eating more.