The last bone marrow Madison had showed she was 100% engrafted. Apparently, this percentage can change. Monday's bone marrow showed she was 95% engrafted. We have been waiting on the FISH testing and it came today and she doesn't have monosomy 7. God is good!
Madison saw Molly her speech therapist/ot this morning. Molly has seen Madison since pre-transplant and I trust her opinion. She feels it is time to try an NG tube. We meet with the surgeon on Monday. Dr.Bhatla wants to get all of this started next week. The plan is she will be admitted try the NG tube and if it doesn't work she will get a g-button for feedings. Please continue to pray for Madison. The road to recovery has been very difficult for her. Another long day in the books. Bedtime for us! Good night:)
11 Comments
Vicki Durbin
11/5/2015 04:47:13 pm
Madison is such a precious jewel....thank you for sharing your families journy.....we say prayers for all of you daily & yes GOD is sooooooo good!
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Tami
11/5/2015 04:57:56 pm
Praying for you and your sweet baby girl along with Ryan and the other kiddos.
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Michelle
11/5/2015 05:47:51 pm
Prayers for sweet precious Madison! Thoughts & Prayers for you too Lyndsay!
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Ginger wehrle
11/5/2015 06:01:47 pm
Continue to pray for great miracles for that beautiful child
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Lisa Riedy
11/5/2015 06:06:05 pm
Continued prayers for Madison, for healing and prayers for your entire family!! What a great journey you are sharing with all of us! You are an inspiration!!
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Angie Rhodes
11/5/2015 07:33:27 pm
What wonderful news!
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Brenda Beck
11/5/2015 07:41:24 pm
In our thoughts and prayers.GOD is GOOD.
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Aunt Marcia
11/5/2015 10:32:51 pm
Praying daily for little Madison and her family❤
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Sandy and David muma
11/6/2015 04:33:48 am
We are praying everyday for Madison and your whole family god is good
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Nancy Holland
11/6/2015 04:53:27 am
Continuing to pray for every single bit of healing-hope-blessings God has in store for your sweet little Madison.
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carolyn wadkins
11/6/2015 05:25:53 am
Bless her little heart. Been wondering about her test results. Praying for her and her whole family. What a ride!
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