The last bone marrow Madison had showed she was 100% engrafted. Apparently, this percentage can change. Monday's bone marrow showed she was 95% engrafted. We have been waiting on the FISH testing and it came today and she doesn't have monosomy 7. God is good!
Madison saw Molly her speech therapist/ot this morning. Molly has seen Madison since pre-transplant and I trust her opinion. She feels it is time to try an NG tube. We meet with the surgeon on Monday. Dr.Bhatla wants to get all of this started next week. The plan is she will be admitted try the NG tube and if it doesn't work she will get a g-button for feedings. Please continue to pray for Madison. The road to recovery has been very difficult for her.
Another long day in the books. Bedtime for us! Good night:)