Madison has been on this journey for 130 days today...Through God's strength, love, and peace we have grown spiritually and remained positive. Yesterday, after meeting with Madison's team of doctors there are some things that need to be addressed. Having a bone marrow transplant is very serious, but in Madison's situation and many others the only way to cure the disease is through bmt.
As most of you know, Madison has GVHD of the gut and esophagus. This issue has effected her eating. Since the end of July, Madison has been vomiting and not eating. To give her the nutrients she needs she has been on TPN for 12 hours at night. Although, this is great TPN can cause liver and kidney problems when on to long. The team of doctors feel it would be best for Madison to have a g-button that will allow her stomach to get full and empty. Given Madison's gvhd the process will be slow. The plan is for Madison to have surgery on Tuesday morning. Madison will be readmitted into the bone marrow transplant unit for the rest of the week. At that point, Madison will return to the Ronald McDonald Apartment and I will slowly increase her feeds. We will no longer be home by Christmas. We need to be together as a family so Harrison and Mae will be staying in St.Louis with me come November 20th. The progress Madison makes with Harrison and Mae around is substantial. As Ryan and I so badly want to be home, we feel rushing Madison will only result in more health problems down the road. As most of you can imagine this week was difficult. Thank you God for always putting life in perspective and sending people our way when encouragement is needed. Aunt Meme, Uncle Jason, and baby Abram came today for a visit (Sawyer had school). It was so great to see them and much needed! Praying for good health so we can all get together again soon! Of course, I was too busy holding Abram and Aunt Meme and Uncle Jason were too busy building forts so we didn't get even one picture:( We trust that God will continue to provide for our emotional, spiritual, and financial needs. We have faith that God has a bigger plan in keeping us in St.Louis the rest of the year and We know God will continue to protect and heal Madison.
8 Comments
Brenda Smith
11/13/2015 06:32:20 pm
Hi, I am Brenda Smith, I saw you at Cardinal Glennon while my granddaughter was there for heart surgery. I wanted to talk to you and tell you I follow your journey and pray for you family. I will keep your family in my prayers.
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Michelle
11/13/2015 08:28:17 pm
Sending Prayers for healing & Strength !
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Kelley
11/14/2015 04:49:26 am
You may not realize it but, you give me hope. You show me what strength is. I pray for complete healing in sweet Madison. I pray for God to bless you and keep you. God will NOT leave your nor forsake you. Love you.
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carolyn wadkins
11/14/2015 06:34:52 am
Oh my, this is like the two,step, isn't it? One step forward and two steps back. Although you don't hear from us often, please know that were lifting you up often! Hugs to all of you! Wish we could do more for you.bless you guys!
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Aunt Donna
11/14/2015 07:22:49 am
Sweet Kiddoes, I love you and will be praying this week as the process moves forward. You are on my mind continually....
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Grammy and Gpa
11/14/2015 07:50:16 am
Our hearts are so sad for your news. We want to be there with you but even if gpa took off work I have been so full of sinus congestion. We love you all so much and all we seem to do is pray, pray pray and know God is in control. We are so anxious for the blogs to keep us updated. Thanks Lindsay.W e love you all.
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Emily
11/14/2015 08:13:26 am
Praying for you always! I am so inspired to see how you use this situation to glorify God! It is truly sad news to hear that you won't be home by Christmas but I believe God has a plan for you all. I love you all Lindsay and constantly praying for all! I remember being in your cabin 5 at church camp. I knew God put you in my life for a reason and I'm so happy he did! God bless all of you! ❤️
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Brenda Beck
11/14/2015 06:12:49 pm
You are such a strong and united family,prayers can move mountains and prayers are coming your way.
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