Madison has been on this journey for 130 days today...Through God's strength, love, and peace we have grown spiritually and remained positive. Yesterday, after meeting with Madison's team of doctors there are some things that need to be addressed. Having a bone marrow transplant is very serious, but in Madison's situation and many others the only way to cure the disease is through bmt.
As most of you know, Madison has GVHD of the gut and esophagus. This issue has effected her eating. Since the end of July, Madison has been vomiting and not eating. To give her the nutrients she needs she has been on TPN for 12 hours at night. Although, this is great TPN can cause liver and kidney problems when on to long. The team of doctors feel it would be best for Madison to have a g-button that will allow her stomach to get full and empty. Given Madison's gvhd the process will be slow.
The plan is for Madison to have surgery on Tuesday morning. Madison will be readmitted into the bone marrow transplant unit for the rest of the week. At that point, Madison will return to the Ronald McDonald Apartment and I will slowly increase her feeds. We will no longer be home by Christmas.
We need to be together as a family so Harrison and Mae will be staying in St.Louis with me come November 20th. The progress Madison makes with Harrison and Mae around is substantial. As Ryan and I so badly want to be home, we feel rushing Madison will only result in more health problems down the road.
As most of you can imagine this week was difficult. Thank you God for always putting life in perspective and sending people our way when encouragement is needed. Aunt Meme, Uncle Jason, and baby Abram came today for a visit (Sawyer had school). It was so great to see them and much needed! Praying for good health so we can all get together again soon! Of course, I was too busy holding Abram and Aunt Meme and Uncle Jason were too busy building forts so we didn't get even one picture:(
We trust that God will continue to provide for our emotional, spiritual, and financial needs. We have faith that God has a bigger plan in keeping us in St.Louis the rest of the year and We know God will continue to protect and heal Madison.