Day 133: Happy Thanksgiving

We rarely have the television on and even more rare this morning when it was on the Today Show. Ryan and I literally just sat down on the couch when the story aired. My eyes immediately filled with tears. Immediately, I was reaching out to the Treu family. St. Jude's in an excellent hospital, but you have to be accepted in order to get their services. Given we have two excellent hospitals near us they usually don't except families like ours... Knowing that St.Jude's has done research on this disease makes me determined for our doctors to contact them. I know Madison is the 14th child in the world to have this disease.. She is the most recent. Ryan and I also know the probability of Harrison and Maebry developing Monosomy 7, which is why we are VERY proactive with blood test and regular bone marrows... I pray the Treu family gets a hold of me for I'm interested in the tests/labs they are doing on their youngest son who hasn't had a bone marrow transplant. I have attached the link if you missed the Today show.

​http://www.today.com/health/siblings-fight-rare-blood-disorder-chemo-bone-marrow-transplants-t57776

LUNCH TIME

We had an excellent lunch and more importantly lots of laughter. Beyond blessed to have Ryan and the kids here for the weekend! We missed all of our extended family, but made sure we kept our family traditions going. 

Happy Thanksgiving! We pray you spent time today like us reflecting on your blessing this year... Enjoy your long weekend with family!

Madison has blood work done tomorrow morning... Praying her liver and kidneys are in a better mood tomorrow then they have been. Also, praying our time in the hospital is short and sweet!