Usually, we are at Hoover farms the day after Thanksgiving. We always pick the biggest and fullest tree they have! Since we can only have an artificial tree this year we had to change our tradition. So... I went to Target and found the cheapest tree I could find! We aim to have a real tree next year! Needless, to say Ryan and I were laughing as we were putting up the tree. We again were reminded that the tree doesn't make or break the holiday season. We celebrate Jesus being born and focus on the relationship we have with him. We enjoyed making the apartment "Beautiful" while listening to some Elvis Christmas Music! We plan on taking the kids to look at Christmas lights this evening and watching old Christmas movies! Madison had blood work this morning so we were on the 4th floor for a couple of hours... Her liver enzymes are high so we will be looking more into that on Monday. I had a wonderful conversation with Dr. Bhatla and she has already sent an email to one of the doctors at St.Jude's hospital she knows... Harrison and Mae will go to clinic on Tuesday for their monthly labs.
Madison's viral labs came back from the biopsies done last week and the HHV6 is now in her colon, esophagus, and gut. We have decided to decrease her anti-rejection meds in thinking her body will be able to fight off the virus. We have to be careful when doing this that the GVHD stays at bay. Madison was swabbed for the rhino virus (common cold) this morning.. Since Maebry is positive we have to closely keep an eye on Madison! As of this morning she is still negative!!!! We will continue to be crazy about washing hands!!!!!! I'm beyond enjoying Ryan and the kids here! The last two days have been filled with QUALITY time that we have desperately needed! The rain makes it even more awesome as we all snuggle underneath blankets!
1 Comment
Elsie
11/27/2015 03:20:53 pm
God bless your family! Beautiful kids, sending prayers for your girl!
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