The best part of this season is all the friends we have become close to. Days like today we need those friends to brighten our day.
Our day was filled with good news and some news that is concerning.... First, Maebry had her first "normal" cbc in a long time! Her platelets were 167,000 which is amazing! Dr.Bhalta heard from St.Jude and there was no new information, except St.Jude will be doing a study on genetic markers in the Spring and Dr.Bhatla is trying to get our kids in on the study. St.Jude's treatment is still the same as Cardinal Glennon's. Madison's liver numbers were still high😭 Along, with that she had another long QT that showed up on the EKG today. Time will tell if it is from a medicine or if genetic. Madison's bestie, Fallon, was admitted into the hospital tonight. Please be in prayer that her fever goes down and they are home soon. Breaks my heart when those we are close with have a rough week! Kayley was able to see her brothers today! I have a feeling they are already protecting their sister❤️ Please continue to pray for Kayley she has another surgery tomorrow.
3 Comments
Meagan Pettigrew
12/3/2015 06:30:47 pm
My goodness poor little babies. Ill pray for everyone. I hope you're doing well. I've only seen you a couple times but I think about you guys everyday. Declan has been sick the last 2 days but it's normal things . Day+13!
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Cindy
12/3/2015 08:09:53 pm
good/bad news. but still so happy for the updates. so blessed friend!
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Familyinfaith
12/3/2015 08:44:07 pm
Still here. Praying & being blessed with your family.
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