Day 151: Weight Gain!!!!

Madison gained weight from Thursday's weigh in!!!!!! I'm beyond excited! Her kidney levels are still not the best so will be pushing even more fluids this week. Today was a quick clinic visit since Thursday will be long day (IVIG and surgeon will be in to change her g-button).


Harrison and Mae also went to clinic today and both are virus free!❤️ I bought another diffuser from Melaleuca since it was the best out of my DoTerra and Young Living ones... (It holds more water and runs longer).... Also, absolutely love the Looters' Legend blend from Olivia tree! It's 100% Essential Oils! The company is in Illinois and love all their products! Between those two things we have all stayed healthy! Maebry tested positive for two viruses, but never had symptoms and the rest of us stayed healthy. Olivia Tree is very affordable and has 20% off Tuesday and Wednesday the promo code is Christmas20

Since I was without a sitter today Ryan took off of work to help me... We enjoyed our extra day together and tomorrow it is back to crazy. Ryan needs to finish the entire addition by Saturday so I can deep clean. Praying for little working "Elves" to show up in the evenings if not Ryan will be pulling some all nighters.

I've said from the beginning that this life isn't about us... It's about praising and keeping our focus on God. I wanted to share some of the friends we have been praying for... Please lift them up also.

Please continue to pray for Haley. She is on continuous oxygen. Please pray that the meds begin working so her body can rest.


Here is the Update on Kayley from Reece-
Sorry for missing yesterday's update. There wasn't much to say and I was getting ready to go back to work. I did go back to work this morning, but ended up getting called to the hospital before noon.

Kayley will be moving to the Texas Children's Hospital as soon as they can secure her a room in the PICU. The doctors believe that the reason she flatlined when the pulled her off the ventilator is that her pulmonary artery (which is errantly going to the body) is half the size of her Aorta (which is errantly going to her lungs), so without the positive pressure of the ventilator, all of her blood pools in her lungs. That means they can't wait for her to grow like they were hoping, and she'll have to have her surgery as soon as possible.

We're still trying to figure out the logistics of how we're getting there and what to do with our boys. Not sure how it will work out, but as Melissa's dad said, the Lord will show us what the right plan is when it's time for us to know. Hoping to hear some more details from the cardiologist tonight after she closes with the surgical team in Houston and the PICU there about when they could have her scheduled and arrange transport. I could be any time between tonight and Wednesday to leave.

To avoid the risk of this turning into a novel, I'll save the rest for tomorrow's update. I will say that today we're thankful for Amanda Ferguson's leadership in coordinating our support system. A lot of people have offered to do the same too, and we're also grateful to them. Amanda has set up a GoFundMe account for Kayley at https://www.gofundme.com/nzehzwkk. Before I even posted this, people started donating. Sometimes I think my life is one long lesson in humility... and today is no different.

DAY Three QUESTION: What is your favorite Bible verse?