Day 287: April Showers Brings... Reflection

ONE YEAR LATER...

Today marks the one year since our lives forever changed! Madison and I celebrated by traveling to St.Louis for clinic, Madison blew out her pants so got a new outfit, and decided naps were not needed.

Aunt Kathy made Madison her favorite meal (spaghetti) and we all are heading to bed early!

I strung all of Madison's beads from the past year and counted them... An emotional process thinking about all she has been through. The length of the beads is a little over 18 feet. Each bead symbolizes a different part of her journey. The beads symbolize the following: 
27: Blood Transfusions
5: Bone Marrow Aspirations
3: Central Line Inserts
1: Central Line Out
10: Days of Chemo
79: visits to the Costas Center
12: Visits from Child Life
5: ER Visits
25: Days with a fever
7- Home nurse visits (apartment and home)
3-Major Surgeries
18- Days with continuous pain meds
112: Days in the hospital
34: Pokes
45: Pt/Ot in the hospital
17: Really Bad Days
15: Tests/Scans
1: Bone Marrow Transplant
1:G-button placement
58: Pt/Ot at home
203: Good Days
4:Speech at home
7:DT at home
12:Dietitian visits hospital and home

Thank you for all your love and prayers this past year! Thank you God for giving us love, peace, and determination! ~Matthew 6:34