 ONE YEAR LATER... Today marks the one year since our lives forever changed! Madison and I celebrated by traveling to St.Louis for clinic, Madison blew out her pants so got a new outfit, and decided naps were not needed. Aunt Kathy made Madison her favorite meal (spaghetti) and we all are heading to bed early! I strung all of Madison's beads from the past year and counted them... An emotional process thinking about all she has been through. The length of the beads is a little over 18 feet. Each bead symbolizes a different part of her journey. The beads symbolize the following: 27: Blood Transfusions 5: Bone Marrow Aspirations 3: Central Line Inserts 1: Central Line Out 10: Days of Chemo 79: visits to the Costas Center 12: Visits from Child Life 5: ER Visits 25: Days with a fever 7- Home nurse visits (apartment and home) 3-Major Surgeries 18- Days with continuous pain meds 112: Days in the hospital 34: Pokes 45: Pt/Ot in the hospital 17: Really Bad Days 15: Tests/Scans 1: Bone Marrow Transplant 1:G-button placement 58: Pt/Ot at home 203: Good Days 4:Speech at home 7:DT at home 12:Dietitian visits hospital and home  Thank you for all your love and prayers this past year! Thank you God for giving us love, peace, and determination! ~Matthew 6:34
2 Comments
Julie Galloway
4/29/2016 04:38:26 am
I am friends with Rachel Thompson. We attend church together and we are in Life Group together also. I just wanted to send my very best thoughts and prayers to you and all of your family. You all are an amazing example of what FAITH truly is. Thank you for being so self-less and for witnessing to so many.God bless each and everyone of you!
Brenda Smith
4/29/2016 02:29:09 pm
Amazing! You are an awesome mother for your children. God bless you and you family. Leave a Reply. |
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