Day 315: Exhaustion

Clinic days for us and all of our friends is exhausting. Many of us travel 45+ miles one way to STL, spend 4+ hours in clinic, and then travel home. It should be no surprise Madison fell asleep at 6 and I'm heading to bed at 7:30.

We love our Glennon family! Please continue to pray for all of them! Please pray specifically for the following: Gabriel will be heading to CHOP next week to begin t-cell therapy, Fallon has strep throat, Declan's parents car broke down, and Madison's kidneys.

Madison had an ultrasound of her kidneys and seen the urologist today. She will have a renal arteriography next week and will see a nephrologist June 24th.

Overall Madison is doing awesome!!! She looks great and has officially gone one week with no cyclosporine (anti-rejection medicine). She did have a skin flare up on her eyes at the beginning of the week, but as of this evening all gvh rashes have been responding to creams! We are praying the broviac line is out by July. Madison still has HHV6 in her gut so some IV meds are still needed. Praying that with no cyclosporine the new immune system will help get rid of the virus.

Bubble Time! This is a fun and easy way for me to keep Madison happy while in clinic!❤️❤️ We are still collecting the following items for Madison's birthday! The items are going towards "Toys on a Mission!"

Here is is a note from Rachel who has organized this mission----"
~ ToYs On A MiSsiOn ~

We are collecting toys for St. Louis' children's hospital - Cardinal Glennon until May 31 in honor of Madison Lash's 2nd Birthday.

Madison received a bone marrow transplant on July 16, 2015 and lived in St. Louis through the end of January 2016. The Lash family made a lot of friends there and continue to build on those relationships. Madison goes to the clinic at Cardinal Glennon twice a week.

On June 14, Madison turns 2!! Help us celebrate by donating toys for children who may have short or long stays in the hospital.

*bubbles*coloringbooks*matchboxcars*playdoh*crayons*
legos

Thank you to those who have already donated!!