12 family recipesIt's Christmas time and the best baker I know spent the night and helped me bake all morning! Wonderful day spending time with my mom making our favorite sweets! The Littles are also learning all the "sweet" secrets! Ryan learned a few years ago that making cinnamon candy was a serious business❤️
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We love us some donuts and our Glennon family! Donuts for the Costas Center❤️🍩✔️ We all have mountains, but the most beautiful part is how we choose to climb them. Family Day at Cardinal Glennon❤️ We were on our way at 6:15am and the littles didn't understand why we were leaving when it was still dark out. There is never a dull moment when waiting for doctors... Madison can now verbally ask the questions the nurses do... "Medicine?" "Bhatla?" "You ick?" The kids decided to have a "Care conference" and discuss Madison's health while eating suckers and drinking soda. Needless to say Dr.Bhatla would have preferred water and carrots. Ryan and I will not be surprised if our children end up in the medical field. We were all beyond hungry after we left the hospital so.... Family dinner date! Mae provides entertainment for all! Between Mae living life and Harrison and Madison belly laughing we brought smiles to several faces today. We left St.Louis with the sun setting and three exhausted children. 2016 has been filled with immense growth. So very thankful for our Glennon family! I hugged Dr. Bhatla on our way out this afternoon and my eyes still fill up with love and gratitude. What Now?We are playing the waiting game on several different things- all blood work for genetics was drawn today. Why are we seeing genetics?? The list is long, but the main reason is we want to aid in research. There is so much not yet known about Monosomy 7 and this is one way we can help.
Madison has an overactive bladder, but adding a medicine to her regiment isn't ideal so we will wait and if she isn't potty trained by April we will revisit concern. The kidney problems are at bay. Those that have or had kidney stones know it's usually a matter of time, but for Madison we pray that is all behind her. Madison has been fighting upper respiratory infections, ear infections, etc. for the last three months, but thankfully she hasn't ran a fever (keeping her out of the hospital). As of now, we will continue to pray and practice superior hand washing. As long as we can keep Madison out of the hospital, Harrison and Mae can continue attending school. Madison had an x-ray of her femur today (done to make sure healing is on track) we haven't heard anything yet, but no news is good news. The best news is.... as long as Madison behaves (no other illnesses) we will not return to STL till January!! Please continue to pray for healing and no illness! Three weeks till our next visit seems surreal! The upcoming two weeks, I will be visiting other hospitals. My mom has surgery next week and my grandpa will have knee replacement the following week. Please keep them in your prayers too. Please continue to send me prayer request. My social media time is limited (by choice). The best way to reach me is by text 618-292-0984. I'm praying for good health, time to celebrate the true meaning of Christmas, and for God to use us to be his hands and feet this holiday season. I put the glasses on Madison and she kept her head down.... then in a quiet voice she looked up at me and said, "You ike em' mom?" I replied with a smile on my face, "I love them!" Madison then smiled and 24 hours later still has them on and even wore them to bed last night. One big thing I have embraced the last two years is our actions and reactions affect others. Our kids' responses to situations, tragedies, and life are typically a mirror reflection of ours. Our kids look to use when they don't know how to respond to life. Yesterday, wasn't the first time Madison has been unsure about something, but it was the first time she could verbally express what she was thinking. Those words "You ike em' mom?" went straight to my heart. Until yesterday she could only express a certain face when unsure... during our journey (18 months) I have focused on being positive. No matter my emotions I smiled and spoke words of love. Yes, I failed at times, but Madison's response most of the time was based on my reactions. Long hosiptal stays, scans, tests, exams, new people, new places, medicines,.... the list goes on and on.... Our choice to embrace the last 18 months shows on Madison's face. How is Madison doing? We still have four therapist in our home every week. We love them and they have become part of our family. Our visits to STL depend on Madison. We still go often- once a week or every other. We have a big day in STL on Thursday. Madison will be seeing urology, nephrology, oncology, a pediatric dentist, and ophthalmology. The rest of us will be getting blood drawn and meeting with genetics. She looks wonderful! Her immune system is still weak and seems to be getting every virus she comes into contact with. Our outings with her are limited and will continue that way till she is stronger. We had to postpone vaccines due to this weakness. Please be in prayer for God's will to be done, a smooth day, and for God to use us. How is the Lash Crew?? We are enjoying one another! We decorated our tree last night so our home is officially ready for Christmas❤️ Mae and Madison love their baby dolls and helping around the house❤️ Harrison loves school and don't tell him, but I would be fine with him only going two days a week❤️. Ryan has been doing side jobs in the evenings and I've been doing nothing, but watching television (a little mom humor- way more funny then the long list😂)
December is in full swing, but don't get to busy you miss the needs right in front of you ❤️ |
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